RESOURCE DIRECTORY: Support Groups

• Alzheimer’s Disease Support Groups 

800-272-3900

www.communityresourcefinder.org

To find a support group, go to website above, click on “Programs and Events” and enter your location. Can also access information and verify group meeting days, times and locations by calling.

• Brain Injury Support Groups

607-283-2163

khindes@bianys.org

Caregivers brain injury support group (virtual). Second Tuesday of each month, 1 – 2:30 p.m.

Co-facilitated by Kelly Hindes (BIANYS) and Manny Pelligra (Caregiver)

Evening caregivers brain injury support group (virtual)

1st Thursday of each month, 6:30– 8:00 p.m.

Contact: Kelly Hindes, 607-283-2163

   Email: khindes@bianys.org

Parent Support Group (Virtual)

For parents raising children with brain injuries under the age of 18

2nd Monday of each month, 7-8 p.m.

Contact: Danielle Bergson, Email: parentsg23@gmail.com

Co-facilitated by Danielle Bergson (Parent) and William Watson (Neuropsychologist)

Rochester Support Group (Virtual)

2nd Wednesday, 6:30 – 8:00 p.m.

Contact: BIANYS

518-459-7911 • Email: ecreamer@bianys.org

• Cancer Support Community at Gilda’s Club

255 Alexander St., Rochester, NY 14607 • 585-423-9700

https://cscrochester.org/

All in-person meetings are held at nonprofit’s Alexander Street offices unless stated on the nonprofit’s calendar. Those who want to join groups must become members of Cancer Support Community at Gilda’s Club. Anyone can join and membership is free, though new members must fill out some forms, including a confidentiality agreement.

• Caregiver Support Groups

CURE Childhood Cancer Association Parent Advocate Program

200 Westfall Road, Rochester, NY 14620 • 585-473-0180

www.curekidscancer.com

A peer-to-peer model to support parents who have a child who is undergoing treatment for cancer or a chronic blood disorder. The Parent Advocates are parents who have gone through that experience, and can provide emotional support during that difficult time.

• Fetal Alcohol Spectrum Disorders Parent Networking Support Group 

585-719-3480

jfaringer@depaul.org

The term “fetal alcohol spectrum disorders” (FASDs) describes a constellation of effects that are seen in those who have had prenatal exposure to alcohol. This group provides networking opportunities and support for parents of children with FASD. Group meets online one Wednesday a month from 10-11 a.m. For more information and the next meeting date, call or email Jennifer Faringer at the telephone number or address above. For more information on FASD, go to: https://ncadd-ra.org/resources/awareness-campaigns/fetal-alcohol-spectrum-disorder

• NCADD-RA

1931 Buffalo Road, Rochester, NY 14624 • 585-719-3480 • 585-719-3481

https://ncadd-ra.org

Group meets online one Wednesday a month. Call Jennifer Faringer, 585-719-3480, for the exact dates and times.