• Alzheimer’s Association, Rochester & Finger Lakes Region
200 Meridian Center Blvd., Ste. 110, Rochester, NY 14618 • 24/7 Helpline 1-800-272-3900
inforochny@alz.org • www.alz.org/rochesterny
The leading voluntary health organization in dementia care, support, and research, the Alzheimer’s Association, Rochester & Finger Lakes Region serves individuals who live with Alzheimer’s and related dementias and their caregivers in Chemung, Livingston, Monroe, Ontario, Schuyler, Seneca, Steuben, Wayne and Yates counties. A team of professional care coordinators will help your family navigate the difficult decisions and uncertainties you face at every stage of the disease. The nonprofit also funds a multitude of research initiatives in an effort to find new methods of treatment and prevention, and a cure for the progressive disease. To set up a care consultation, join a support group, or register for social activities and educational programs the number above.
• ALS Association
135 Old Cove Road, Suite 213, Liverpool, NY 13090 • 315-413-0121
The ALS Association offers help and hope to those facing ALS (Amyotrophic Lateral Sclerosis) and their families through supporting research into the disease and its treatment. In addition, the association helps individuals and families connect with programs, services and resources that are available in New York State. Covers all of New York state.
• American Diabetes Association
2451 Crystal Dr., Suite 900, Arlington, VA 22202 • 800-342-2383
Offers a variety of free programs, workshops and other services for those living with diabetes and their friends and families, including Camp Aspire, a summer camp for children.
• American Heart Association/American Stroke Association
National Center, 7272 Greenville Ave., Dallas, TX 75231 • 1-800-242-8721
Rochester chapter operates by remote
585-371-3227
RochesterAHA@heart.org • Heart.org/rochesterny
This nonprofit offers a variety of services in a bid to create a world free of heart disease and stroke, and one in which people live longer, healthier lives. These include referring those who are interested to classes in smoking cessation and CPR, advocating for the establishment of local walking and biking routes and seeking to make healthier food options available in neighborhoods. The nonprofit also supports efforts to give children opportunities to be more physically active while in school.
• American Lung Association in New York, Rochester
800-LUNGUSA (800-586-4872)
The American Lung Association supports research and educational efforts and engages in advocacy in order to improve lung health, prevent lung disease and save lives. It has four strategic imperatives: to defeat lung cancer, reduce the burdens of lung disease upon those affected by it and their families, eliminate tobacco use and tobacco-related diseases, and improve the air we breathe overall.
• American Stroke Association
No physical offices. All services remote.
585-371-3227
Strives to reduce the incidence and impact of stroke, and to meet the needs of stroke survivors, their caregivers, and healthcare professionals who are in the nationwide stroke community. It also provides supports for those impacted by stroke, and other services.
• Brain Injury Association of New York State
5 Pine West Plaza, Suite 506, Albany, NY 12205 • 518-459-7911 • Family Helpline: 800-444-6443
info@bianys.org • https://bianys.org
The mission of this statewide non profit is to minimize the incidence of brain injury, and to support, educate and advocate for adults and children who have suffered such injuries and their families. The Association offers prevention programs, professional development programs, a video and publications library and a toll-free family help line, and has chapters and support groups throughout New York State.
• Cystic Fibrosis Foundation – Western New York
100 College Parkway, Suite 280, Williamsville, NY 14221 • 716-204-2535
www.cff.org/chapters/western-
The Cystic Fibrosis Foundation is dedicated to finding a cure for cystic fibrosis, and helping all who have the disease lead full, productive lives. To those ends, the nonprofit funds research into the disease and its treatment, promotes individualized treatment, and strives to ensure that those who have been diagnosed with cystic fibrosis have access to high-quality, specialized care. The local chapter serves the Rochester and Buffalo areas.
• Crohn’s & Colitis Foundation
888-694-8872
www.crohnscolitisfoundation.
The Crohn’s & Colitis Foundation is dedicated to finding cures for Crohn’s disease and ulcerative colitis, and to improving quality of life for children and adults who are affected by those diseases. To those ends, the nonprofit sponsors research, offers educational programs for patients and healthcare professionals, and provides supportive services that can help people cope with the diseases. Crohn’s disease and ulcerative colitis are collectively known as inflammatory bowel diseases (IBD). For information on support groups, call the foundation.
• Huntington’s Disease Society of America
Northeast Region, 505 Eighth Ave. Suite 902, New York, NY 10018 • 212-242-1968 • 800-345-HDSA (4372)
Provides community and educational services, advocacy and support for research in an effort to improve the lives of all affected by Huntington’s disease.
• March of Dimes
National Office, 1550 Crystal Drive, Suite 1300, Arlington, VA 22202 • 888-663-4637
The March of Dimes is a nationwide nonprofit that seeks to improve the health of babies and reduce infant mortality through preventing premature birth and birth defects. Local chapters make available funds for projects that are designed to meet pregnant women’s perinatal needs.
• Mental Health Association of Rochester/Monroe County, Inc.
Main Office: 274 N Goodman St., Suite D103, Rochester, NY 14607 • 585-325-3145
Livingston County: Contact main office, 585-333-6013
Ontario County: Contact main office, 585-629-0386
Provides creative wellness opportunities, a self-help drop-in service, employment assistance, family peer support services, life skills workshops and other services that promote mental wellness.
• Muscular Dystrophy Association (MDA)
National Office, 1016 W. Jackson Blvd #1073, Chicago, IL 60607 • 800-572-1717
ResourceCenter@mdusa.org • www.mda.org
MDA supports research into life-changing treatments for multiple dystrophy and related diseases. Outside the US government, the nonprofit is the largest source of funding for such research.
• National Kidney Foundation Serving Upstate and Western New York
1344 University Ave., Suite 270, Rochester, NY 14607 • 585-598-3963
NKF Cares helpline: 855-653-2273 or nkfcares@kidney.org.
infoupny@kidney.org • www.kidney.org/UpstateNewYork
The National Kidney Foundation is revolutionizing the fight to save lives by eliminating preventable kidney disease, accelerating innovation for the dignity of the patient experience, and dismantling structural inequities in kidney care, dialysis, and transplantation. Please refer to www.kidney.org/UpstateNewYork for up-to-date information on programs and events, in addition to support resources, toll-free help lines and on-line communities. NKF Cares, the nonprofit’s helpline, gives those living with kidney disease, their family members and their caregivers access to some of the support they need, along with information on kidney disease, organ donation and organ transplantation.
• Parkinson’s Foundation New York
1359 Broadway, Ste. 1509, New York, NY 10018 • Helpline: 1-800-4PD-INFO (473-4636)
The Parkinson’s Foundation conducts research, education, and public advocacy related to Parkinson’s disease. For information on support groups for those living with Parkinson’s disease and their families, go to: www.parkinson.org/newyork.
• Rochester Area Community Foundation
500 East Ave., Rochester, NY 14607 • 585-271-4100
The Rochester Area Community Foundation partners with generous philanthropists and community organizations to improve the quality of life for people who live and work in the eight-county region it serves, which includes Monroe, Ontario and Livingston counties. As a leading grantmaker, the nonprofit focuses upon two main goals: creating an equitable community and strengthening the region’s vitality.